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Watch my 2-year ALS journey — from 2 days before diagnosis, to 1 year later, to today, when I can no longer speak. This is my unfiltered progression with amyotrophic lateral sclerosis (ALS) — also known as Lou Gehrig’s disease, motor neuron disease (MND), or Charcot’s disease. Two years ago, I was teaching, walking, and talking. One year later, my speech began to fade. Today, I rely on assistive tech to communicate — but my story isn’t over. This video captures the physical decline, emotional fi
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Watch my 2-year ALS journey — from 2 days before diagnosis, to 1 year later, to today, when I can no longer speak. This is my unfiltered progression with amyotrophic lateral sclerosis (ALS) — also known as Lou Gehrig’s disease, motor neuron disease (MND), or Charcot’s disease. Two years ago, I was teaching, walking, and talking. One year later, my speech began to fade. Today, I rely on assistive tech to communicate — but my story isn’t over. This video captures the physical decline, emotional fi
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FacebookDarin Nakakihara
Watch my 2-year ALS journey — from 2 days before diagnosis, to 1 year later, to today, when I can no longer speak. This is my unfiltered progression with amyotrophic lateral sclerosis (ALS) — also known as Lou Gehrig’s disease, motor neuron disease (MND), or Charcot’s disease. Two years ago, I was teaching, walking, and talking. One year later, my speech began to fade. Today, I rely on assistive tech to communicate — but my story isn’t over. This video captures the physical decline, emotional fi
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Watch my 2-year ALS journey — from 2 days before diagnosis, to 1 year later, to today, when I can no longer speak. This is my unfiltered progression with amyotrophic lateral sclerosis (ALS) — also known as Lou Gehrig’s disease, motor neuron disease (MND), or Charcot’s disease. Two years ago, I was teaching, walking, and talking. One year later, my speech began to fade. Today, I rely on assistive tech to communicate — but my story isn’t over. This video captures the physical decline, emotional fi
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FacebookDarin Nakakihara
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In my language we greet by saying Sawubona. It means we see you. Not I see you. We. Because I do not walk into any room alone. I carry on my shoulders every ancestor who fought and sacrificed to bring me to this moment. That is not metaphor. That is just what my language has always understood about who we are.
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Skip’s ALS journey didn’t happen overnight. 💙 This timeline is a reminder that ALS changes lives one day at a time. Not just for the person diagnosed, but for everyone who loves them. Skip is a proud Army veteran, a 3x Ironman, and a fighter. While this video shares where the journey has led, it’s only part of the story. As his stepdaughter-in-law, I’ll be sharing Felicia’s side of this journey as well as Skip’s! Offering a closer look at the daily realities, challenges, victories, and moments
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Happy AmiguruMAY, Wooblers! We figured now would be a great time to touch up on some basics. 👀 First up: the magic circle/loop/ring Beginner Wooble kits come pre-started so you can skip the magic circle when you're first starting out, but knowing how to do this skill serve you well throughout your woobly journey. #crochet #crochettok #crochetforbeginners #crochetforbegginers #amigurumiforbeginners #amigurumicrochet #amigurumiscrochet #learncrochet #learntocrochet #crochetersoftiktok #amigurumi
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