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Hello to everyone new!! Here is some information about Harper. #rarereality #hopeforharper #hypoventilation #rohhadsyndrome
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TikTokhopeforharper
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TikTokchronicallypersevering
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People love to comment “It’s FND” like it’s a magic explanation. So here’s the truth: FND is real. It deserves treatment and good care. But it does not cause spasticity, nerve death, muscle damage, hypoventilation, respiratory failure, or colon inertia. Functional issues won’t cause structural findings. Functional issues don’t cause an EMG to show active denervation Functional issues don’t make a colon not move or contract. Functional issues don’t cause brisk reflexes. These are structural, meas
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TikTokpallisons_journey
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My brain doesn’t tell me to breathe… but this does!! AND it’s broken?! 🫣 See the x’s on the screen? That means that my patient connector cable is broken. This cable is more similar to your phone charger than you probably would probably think, and just like your phone charger tends to break with movement. On one end of this cable plugs directly into my diaphragmatic stimulator, this is generally the end that breaks. The other end of this cable plugs into the wires that go directly into my body.
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TikTokchronicallypersevering
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TikTokhopeforharper
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