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0:48
Adalia Rose Williams, who documented her life with a rare genetic disorder, has died at 15
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The History log on Instagram: "Adalia Rose was born in Texas in 2006 with Hutchinson–Gilford Progeria Syndrome, a rare genetic disorder that causes the body to age far faster than normal. Her family began noticing signs within months — tight skin, hair loss, and physical changes usually seen in old age. By the time she was a toddler, doctors confirmed what every symptom suggested: progeria, a condition so rare it affects only about one in 18 million children worldwide. As she grew, Adalia became
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The Adalia Rose Show on Instagram: "I had no idea that February was Heart Health Awareness Month. I want to share Adalia’s story and a brief summary of what she went through. She was diagnosed with progeria at 3 months. They told me that the leading cause of death in children with progeria was stroke/ heart attack/heart failure. They also told me that the average lifespan of a child with progeria was 13, Adalia had just turned 15 when her heart failed her. (literally sobbing while I type this) I
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